SDF Socializing Autoimmune at ‘Tahura’

Press Release

Bandung, 14th of April 2019

SDF Autoimmune Socialization at ‘Tahura

Welcoming World Lupus Day and World Autoimmune Day, Syamsi Dhuha Foundation (SDF)[1] held an event titled ‘Go Healthy, Go Organic, Be Happy!’ at ‘Tahura’ (Taman Hutan Raya – Juanda  Forest Park), Bandung – 14th of April  2019. Lifestyle and dietary habits of people with autoimmune diseases is the main highlight this time.

“Autoimmune is a disease caused by changes in the function of the immune system that was supposed to protect the body from disease, but instead attacking its own body. The cause of changes in its function is still unknown for certain, but hormonal, environmental and genetics are the trigger factors of emergence of the autoimmune. There are more than 100 types of autoimmune diseases, including SLE (Systemic Lupus Erythematosus), RA (Rheumatoid Arthritis), Scleroderma, Sjörgren’s syndrome, ITP (Idiopathic Thrombocytopenic Purpura), APS (Antiphospholipid Antibody Syndrome), MS (Multiple Sclerosis) and Type 1 Diabetes. Along with the development of medicine’s science and technology, the mystery of autoimmune diseases is increasingly revealed. Although there is no definite number, the number of patients tends to increase due to early detection possibility. Most of people with autoimmune, 78% are women at productive age between 15-45 years old. In addition to medical therapy, dietary habit and lifestyle are very influential in autoimmune treatment. People with autoimmune must pay close attention to what kind of food they consume,” explained Dr. dr. Iris Rengganis, SpPD-KAI. “Consumption of organic food is one of the efforts that can be done by people with autoimmune who want to be healthier. Furthermore, at the event SDF invites people with autoimmune who have implemented this and feel the improvement in their physical conditions. One of them, Sella from Palembang isl sharing her tips on processing organic products, ” explained Dian Syarief, Chair of SDF who also suffers lupus.

Previously, an Organic Gardening Training was held on April 6 at the Permaculture Wooden House managed by Luky Lambang, a person with lupus. During the training, participants consist of people with autoimmune and public, saw directly how to manage organic gardens, starting from preparing plant seeds, providing treatments without using pesticides, nor chemical fertilizers, then harvesting various organic vegetables. “To start gardening, we can utilize available plot of land, it can also be in pots. As substitute for chemical fertilizers, we can use organic food waste, manure or compost. With organic gardening, besides getting better food ingredients and maintaining quality, if pursued and carried out seriously, it can also be a source of income,” said Luky. On that occasion, Dedy Dharmawan, Secretary of the Bandung City Environment and Hygiene Agency, invited participants to start reducing, sorting, and utilizing household waste to lower the burden of municipal waste management which could reach 1,500 tons/day.

Routine exercise for people with autoimmune is very important to keep the muscles and joints flexible, besides preventing stiffness in the joint. After completing the Fun Walk and a cheerful exercise at the beginning of the event, Hilda D. Kustiwa invited participants to do Extraordinary Yoga which is useful for stretching and flexibility of the body. During the event, there were many other activities such as free autoimmune consultation with autoimmune caring doctors of multi-discipline, organic processed cooking demonstrations, organic stalls, and autoimmuners friends, as well the performance and entertainmet by The Lulo (consisting of people with autoimmune, visually impaired people and volunteers of SDF) and guest star Lala Karmela, singer of ‘Satu Jam Saja’ (‘Only One Hour’) and star of  the movie ‘Ngenest’ and ‘Kuambil Lagi Hatiku (‘I Take My Heart Back’).

 

For more information, please contact:

  • Laila Panchasari – SDF Manager, Hp.  0812 912 4829, e-mail : lpancha@yahoo.com
  • Dian Syarief – SDF Chair, Hp : 0816 70 93 91, e-mail: end@cbn.net.id

[1] Non-profit NGO caring for autoimmune, awarded WHO Sasakawa Health Prize  2012.

Fun Walk

Harvesting organic vegetables

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