Health
Accompanying Odapus (people living with lupus) and their families through health challenges with medical cost assistance, mentoring, education, and a community where they can share and strengthen one another
Sometimes the heaviest part is not just the pain, but everything that comes with it.
Receiving a life-changing diagnosis can be a very lonely moment. Suddenly so much changes: routines, plans, the way the body works. In the midst of it all, there is another burden that is just as heavy.
There is a loneliness that comes from feeling that no one truly understands what they are going through. There is the discomfort of being pitied: the looks, the tone of voice, and the changed treatment from people around them, which unknowingly can make them feel weaker than they really are. And there are moments when they are tired, tired of fighting, tired of pretending to be fine, and quietly asking: how long will this last?
We don’t have a magic cure for any of this. But after two decades of supporting Odapus (Lupus survivors) and friends with low vision, we know one thing for certain: the burden feels so much lighter when you don't have to carry it alone.
This health program is here to accompany all of that, not only the pain, but everything that comes with it.
Explore Programs in This Pillar
What do they say?
Ardinal Purbowo
Person with Low Vision
At SDF Bandung, I have experienced a 'mentarimorfosa' (metamorphosis) from the old Bowo to the Bowo I am today. I have participated in various trainings such as aromatherapy massage, talking computers, plant cultivation development, and business workshops Thank God, I am now able to run a massage business and a boarding house. BriCane is the most wonderful gift from SDF to me, because BriCane is the cane I have always dreamed of and it means so much to me. My hope is that SDF continues to thrive and keeps moving forward in developing assistive tools for the blind.
Abelda
Person with Lupus
SDF means a lot to me. Since I was diagnosed with lupus, my parents introduced me to SDF. Thanks to SDF, I always felt full of hope during my treatment until I was declared in remission after almost 5 years. Thank you SDF, may you always spread kindness and inspire lupus warriors.
Prita Maharani
Person with Lupus
I am very happy to be a part of this autoimmune community, where we support and motivate each other as fellow autoimmune survivors. Through this community, low vision I also had the opportunity to teach English to elementary school students. This has been an amazing journey because I have wonderful, smart students who have a high spirit for learning English."
Marilyn
Person with Low Vision
I feel happy because I have understanding friends. Aside from that, I am also glad to be able to share my experiences."